Hi, i used to be a member of this site but i have been busy in College so i don't really have time to log in. I was in youtube watching a video of depression and i left a comment. My comment was does anyone have depression so bad that they have to constantly go to the bathroom?. Then in a few hrs i got a replied by someone who said "hey you might have pyroluria, please do some research and check the symptoms". I was like well thank you and i will go check the symptoms and i did and i have almost all of the symptoms. I have never heard of PYROLURIA before and i found it interesting how this is not well known so i am posting this because i am sure that some of you might have it and might not know it. I am posting this in hopes to see who has it and let see who shares this symptoms. Below i will post the definition of PYROLUIA and its symptoms.
**I copied and pasted this from a FORUM** Please feel free to do your own research if you like**.
Pyroluria is a blood condition. In our blood, we have Kryptopyrroles (nothing to do with Superman!). These pyrroles remove unwanted substances from our blood and are passed through the urine. When a person has too many pyrroles, they have Pyroluria. An excess of pyrolles means that they start removing additional substances from the blood, in particular vitamins and minerals such as B6, B12, Zinc, and Manganese. (B6 and Zinc are the most commonly lost)
The loss of these particular vitamins and minerals can exacerbate mental illness, autism, and ADHD as they are needed to maintain neurological balance. Excessive loss of these can lead to psychosis and this disorder is common amongst those with schizophrenia, bipolar disorder, depression, anxiety, autism and in some with ADHD. Alcoholism is prevalent in those with Pyroluria too.
Schizophrenia 27%
Depression 20%
Autism 20%
Bipolar Disorder 18%
General population 10%
A person can have mild pyroluria and not struggle much, but in times of stress, the disorder can "flare up" and production of pyrroles can increase, causing increased stripping of essentials from the blood, and thus causing further setbacks.
Some signs and symptoms: Common emotional and physical characteristics of pyroluria.
Little or no dream recall
White spots on finger nails
Poor morning appetite +/- tendency to skip breakfast
Morning nausea
Pale skin +/- poor tanning +/- burn easy in sun
Sensitivity to bright light
Hypersensitive to loud noises
Reading difficulties (e.g. dyslexia)
Poor ability to cope with stress
Mood swings or temper outbursts
Histrionic (dramatic)
Argumentative/enjoy argument
Much higher capability & alertness in the evening, compared to mornings
Poor short term memory
Abnormal body fat distribution
Dry skin
Anxiousness
Significant growth after the age of 16
It is not necessary to have all of these, and having several of these doesn't necessarily mean a positive for pyroluria, but the list is a good indicator of whether a test is needed.
The good news is as follows:
1. The test is simple and pain-free - a urine test.
2. The treatment is simple and pain-free - vitamins taken to replace what is being lost. These are not cheap, but it seems to me such a simple solution in our world of complex answers is a wonder to behold.
My son was diagnosed with pyroluria last year. Since he started on his vitamins I saw huge accelerated social development, reduction in anxiety, increased willingness to participate in the world around him, and less overall exhaustion. I believe this diagnosis has kick-started a new phase in his life where the world is beginning to open up and new opportunities are offering themselves to him.
We now have a light at the end of the tunnel and I can picture him potentially as an independent adult.
I have heard of some studies which are underway where they have tested children with severe autism (non-verbal), and treated those with a positive for pyroluria, with a vitamin regime. Apparently the success rate is phenomenal and some of these children start talking within two weeks of commencing treatment.
For further information I would recommend this site:
http://www.nutritional-healing.com.a...ding=Pyroluria
I would also recommend reading through some of the links at the bottom of that page - they lead to further research papers and very interesting in depth information.
**I copied and pasted this from a FORUM** Please feel free to do your own research if you like**.
Pyroluria is a blood condition. In our blood, we have Kryptopyrroles (nothing to do with Superman!). These pyrroles remove unwanted substances from our blood and are passed through the urine. When a person has too many pyrroles, they have Pyroluria. An excess of pyrolles means that they start removing additional substances from the blood, in particular vitamins and minerals such as B6, B12, Zinc, and Manganese. (B6 and Zinc are the most commonly lost)
The loss of these particular vitamins and minerals can exacerbate mental illness, autism, and ADHD as they are needed to maintain neurological balance. Excessive loss of these can lead to psychosis and this disorder is common amongst those with schizophrenia, bipolar disorder, depression, anxiety, autism and in some with ADHD. Alcoholism is prevalent in those with Pyroluria too.
Schizophrenia 27%
Depression 20%
Autism 20%
Bipolar Disorder 18%
General population 10%
A person can have mild pyroluria and not struggle much, but in times of stress, the disorder can "flare up" and production of pyrroles can increase, causing increased stripping of essentials from the blood, and thus causing further setbacks.
Some signs and symptoms: Common emotional and physical characteristics of pyroluria.
Little or no dream recall
White spots on finger nails
Poor morning appetite +/- tendency to skip breakfast
Morning nausea
Pale skin +/- poor tanning +/- burn easy in sun
Sensitivity to bright light
Hypersensitive to loud noises
Reading difficulties (e.g. dyslexia)
Poor ability to cope with stress
Mood swings or temper outbursts
Histrionic (dramatic)
Argumentative/enjoy argument
Much higher capability & alertness in the evening, compared to mornings
Poor short term memory
Abnormal body fat distribution
Dry skin
Anxiousness
Significant growth after the age of 16
It is not necessary to have all of these, and having several of these doesn't necessarily mean a positive for pyroluria, but the list is a good indicator of whether a test is needed.
The good news is as follows:
1. The test is simple and pain-free - a urine test.
2. The treatment is simple and pain-free - vitamins taken to replace what is being lost. These are not cheap, but it seems to me such a simple solution in our world of complex answers is a wonder to behold.
My son was diagnosed with pyroluria last year. Since he started on his vitamins I saw huge accelerated social development, reduction in anxiety, increased willingness to participate in the world around him, and less overall exhaustion. I believe this diagnosis has kick-started a new phase in his life where the world is beginning to open up and new opportunities are offering themselves to him.
We now have a light at the end of the tunnel and I can picture him potentially as an independent adult.
I have heard of some studies which are underway where they have tested children with severe autism (non-verbal), and treated those with a positive for pyroluria, with a vitamin regime. Apparently the success rate is phenomenal and some of these children start talking within two weeks of commencing treatment.
For further information I would recommend this site:
http://www.nutritional-healing.com.a...ding=Pyroluria
I would also recommend reading through some of the links at the bottom of that page - they lead to further research papers and very interesting in depth information.
Dry skin, pale skin, poor morning appetite, argumentative, anxiousness...and loads of other ones, are perfectly normal and usual complaints.