I finally gave up trying... going for ETS :(

[Sprawling]

I feel your pain. I'm 51 and had hands and feet sweating my entire life. During the warm months I sweat through out my body. The wonderful crotch sweat, underarms, legs, ass and it all sucks. Years ago I made the call to an ETS surgeon and it scared the crap out of me. Yes, people who sweat throughout their entire body will be at higher risk for compensatory sweating.

When I do Inoto for my hands and feet I get compensatory sweating elsewhere. I cannot imagine what it would be like with ets. My body always thinks it's to hot especially when it's warm outside. Think twice or more before doing it. I gather you are in your 20's or so. I have never not gotten the girl because of sweating. I did let it interfere with my career choices and it did take me till age 45 before admitting my sweating problem to my friends. It sucks, but let your friends know what you have and what you plan to do about it. I felt more free letting my friends an family know the about the sweaty burden I was sliding on.

I'm not going to say go for it. I will say you are at high risk for a very sweaty outcome. I have not heard of any natural remedies working for any length of time. Our Symp Nervous System is just overcharged and is also vital to many other functions in our body. Why destroy what is already broken. I say wait... don't do it.

The choice is yours... good luck to you!

You will always have a place here to bitch and moan. We all share your sweaty life. Think again before you POSSIBLY make your life into a living swimming pool.

That's my two cents worth of advice. Is it really worth the gamble? Keep asking questions. Ask those people who were successful not getting major compensatory sweating if they had sweating throughout most of their body prior to having ETS. Truly evaluate your risk factor. Then after you evaluate, evaluate again.

Sorry for the rambling - We are all on the same damn sweaty side. I truly feel for you.
I'd rather hear you bitch and moan than get cut up.

 

[Rexus]

Thank you so much for your post

so did you get the girl?

I really hate it really really hate it

I went to the Dr. today and he was like you will be at an increased risk for foot sweating. I was like I browsed the internet for days and their are people who get soaked on their groins i mean who the **** would sleep with u if you're dripping from your genital area he told me it's very very rare and that he'll only cut T2 at certain places which stops the hands and armpits a bit and maybe the face a bit from sweating. He claims he's done over 500 surgeries here in Lebanon (he's the only ETS surgeon here). I am very scared of what i might do next. I will try Botox as soon as I can to see if it helps. If it's not, I am sorry to inform you guys that I will go ahead with it. Tell me stupid, tell me whatever, i just hit a wall and i feel suicidal. might as well get ets before suiciding.

Again, thank u so much for sharing sprawling.

 

[Rexus]

OK guys, now I truly made up a decision. I saw an educated family Dr. and he COMPLETELY FORBID ME FROM EVEN THINKING ABOUT IT, he said ESPECIALLY SINCE I feel lots of heat and sweat all over, like what you said Sprawling. He is an advocate of banning this surgery since he said even if it's a success it will have debilitating effects on your health in the long run. I guess it's back to the acupucturist (he told me to give him 2 months, so far I only gave him one week and gave up so I'll go back), eating healthy, losing weight, exercising, whatever.

At least I don't have regrets now about not doing ETS. It's like at the same time I felt a weight has been lifted off my shoulders. Maybe I was really annoyed that mybe there was a big chance it would work and I wasn't trying it, but now I completely forgot the idea. I'll give Botox a shot and if it doesn't work I'll jolt myself with ionto even if it takes hours. I'm not gonna give up and let this stop me.

I'm sorry to all those who kept up with my moaning in this USELESS topic. I basically said I'm doing it and backed out, but now I would never suggest ets for anyone. Everyone has different bodies, we sweat a lot, we can find methods of treating it, even if it takes half an hour of us everyday (like ionto). What annoys me most is that i can't travel but if botox works that's a good 2-3 months so i can do my travels efficiently.

Thanks all and any further input/support words for us hh sufferers that will lift up our spirits is really appreciated

 

[HH]

glad to hear you didn't go through with it in the end, it probably would of made a horrible condition even worse. I know in times of despair we will do anything but there's people on this forum that will help you and listen.
Thanks to this forum its helped with my hh.


good luck for the future

 

[Sprawling]

Rexus, Glad you are deciding against it. You honestly might need a a professional to talk to about your suicidal tendencies. You think that you and I and everyone else suffers from sweating. My child suffers from chronic pain do to a back surgery. She can't work, pain meds do little for her, everyday chores are a major problem. And "we" Sweat. I do understand we can not compare. I have suffered in my life do to this nasty defect.

Yes, I got the girl(s) Married (divorced) one, the others never complained about my sweating. And when the sweat gets going, its everywhere, I mean everywhere and that's without ETS. ETS would have drowned me with the side effects.

So lets move on... lets get you going on the ionto again. I'm serious about the water thing. I understand you night not be able to get rainwater, yet there has to be a water source like a pond or stream. If you use a gallon total for treatment, 1/2 of that needs to be water other than tap. Dding baking soda and all the other suggested items never worked for me. Concentrate on the water source! Once we get your hands under control, the rest will fall into place.

You sound like a bright resourceful person. Let's get the water and crank up the ionto machine. Hang in there buddy! You have a group of us here to get you through this.

 

[Rexus]

Thank you guys, thank you.

Sprawling, like should I wait for it to rain? I don't know where I can find a lake or stream in my area, bas I'll look. Is sea water any good? They say add salt to your water so what if sea water is good? My appointment for botox is on tuesday. I hope it works. *prays... Any studies on it for palms? Thank you guys.

 

[Rexus]

i like the fact that you got the girls. And also, I realize everyday that ppl care MUCH LESS about it than we might think. I swear.

 

[Rexus]

oh, and sprawling, i know this is a sensitive issue, but, ummm, sex? how does hh influence it? can u be good with hh? Thanks

 

[Sprawling]

Let me answer your questions:

I'm sure sea water mixed in with tap water will work just fine. Just adding salt to your water never worked for me. It's all about the minerals in the water. What can be better than the sea?

Sex and HH: If you find the right person, and you are relaxed with them, the HH will not be an issue. Slippery sex, especially during the warm months has never been an issue. If you are with a partner and they find it an issue, find another partner. I'm lucky that was one area that wasn't an issue. Other areas of life... HH is,was, and will probably always be a challenge.

If you meet a person you are interested in, talk to them about HH from the start. It feels so good to get it off your chest right from the start. It took me all these years to tell people about my HH. I owe it to these type of message boards. They saved me in many ways by just hearing others write about my problem. It such a relief to see that I'm not alone and others are living my life. The more we stress about it, the worse it gets. Yet how do we not stress... who knows?

I started to stress less once the Ionto started working back in 2005. It was then I saw how the cycle of stress and sweat worked. I realized that the HH was a major part of the anxiety cycle. You worry about sweating and so it happens because our nervous systems are always in flight and fight mode.

Just remember you are not alone and that's why this group exists.

 

[grimaldi]

Good choice mate, even though it's hard, we should all forget about this operation.

Did you ever try anticholnergic drugs (Robinul, Pro-Banthine) or beta blockers (Inderal, Propranolol)? If so, what result?

If was a dope for a while last summer, it helped my symptoms somewhat, but made me into a tired zombie. I quit all medicines for a while since I could feel the side effects so obvious.

But, back then I took 5-6 different drugs at a time. Now days, I will only take beta blockers on occasion, when having presentation, dinner etc. If i take 50-60 mg Inderal before a presentation, I can actually speak calmly without blushing or sweating. It's such a good feeling! But, I will be tired for an entire evening afterwards, and also have problems performing sexually before next morning.

Anticholnergic drugs - I only got hold of a Chinese copy of Pro-Banthine, that was very unreliable. Sometimes it would stop my sweating (amazing feeling) and sometimes it would do next to nothing. It was manufactured in China and a rip off from Pro-Banthine, so I do think the quality had issues.

Having that said, I had a major setback in class today, blushing/flushing when answering a question with my trembling voice. I did only sweat from armpits, feet and hands because the room was cold. However, when class finished, 30 minuted after my question, a girl asked why I "looked like I've been in an oven" referring to my blushed face and chest/neck.

So, tomorrow I will go to the hospital here and ask for Robinul and a new set of Inderal. It should be no problem for me to get, since I have sufficient documents from a doctor in the past.

I plan to take 50-60 mg Inderal every day I leave my house, split up in two doses, one when I wake and one around dinner. I will then have 1-2 days a week when I neither leave my house nor meet any people. That's no problem for me, because I am a writer, so it will only do me good to get stuff done.

Obviously I will use Robinul when weather is "hot" or for social gatherings.

I plan to go on with this for years, before another treatment comes around. I have thought carefully about the exchange, and reckon it is worth 1-2 hours more sleep and decreased sexual drive to escape this nervous hell. With a couple of resting days every week it should be fine.

Most importantly, I do not count on this to CURE my problems. I hope it will IMPROVE my situation. That way, I wont be as disappointed if it do not work miracles, and I will be more happy for the progress, however small it might be.

Check out this for patients on Robinul: http://www.askapatient.com/viewrating.asp?drug=12827&name=ROBINUL

Thanks.

 

[Rexus]

Sprawling: Thanks for speaking openly on this with me. So you think sea water is great for ionto! Lovely the beach is like a 1 min walk from where I live (on the shores of Beirut). I'm doing botox on tuesday (I think I repeated that like a 100 times already haha) and I'm excited and hope it works. It will be like ionto only it will last more which I would really like. I'm doing it with a much better surgeon this time around. He told me if it was injected properly it should stop the sweating by AT LEAST 70%, so I got my hopes up. The only thing I'm afraid of if it works is that it won't last (I'm ok with 2 months, 3 months, but if it's just a month that can't work).

Thank you Sprawling, so much for your support.

Another q, do you think you were successful in your life? Do you think I can be a successful businessman and take over my father's work and improve it? I really feel I can't but I want to be successful so bad. You seem very wise so it's nice for you to talk to me about these life issues. Thank you.

grimaldi: Thank you for your support again bro! It's nice to see you guys give me the thumbs up for opting out. You are right, we should find things that work from here till a solution is found. I will keep my head up keep doing the acupuncture sessions, iontophoresis, botox, whatever till one day maybe there will be a hope for us.

Man, I tried Ditropan, and all I can say is OMG. I go to the bathroom like 50 times and it dries the hell out of me, my mouth smells literally like ****, and I get this weird feeling in my body just like you said like a zombie. I can never take it. Do you think glycopyrrolate would be better? My cousin ordered some from me from the canadian pharmacy (avert) and will send them to me soon. Do you think they will be better zombie wise?

Ok INDERAL. I have the correct one and it's 40 mg. I used one tablet a day for around a week and noticed no effects except being much more confident BUT very tired.

For me, when people ask, I just say I have an overactive sympathetic nervous system which makes my body sweat on its own. I actually LOVE it when people ask since you get a chance to explain instead of them thinking you're a freak. I REALLY REALLY REALLY hate oral meds since they leave very nasty effects so I don't think I'll go back to inderal but I will give avert a try (i will split the 2 mg in half and try it, then take 2 mg, etc.).

But right now my friend, my biggest thing i'm relying on is botox. Doesn't work? Then I'll focus on hands ionto. Oh, and i'll still be doing acupuncture. To see if it's working I'll know from my burning ears, I mean if the heat is no longer in my body, my ears won't burn anymore like they do EVERY SINGLE DAY (for about 3 hrs a day my ears turn red and burn and hurt, I don't find this common amongst most hh sufferers, maybe I'm much more of a fd case)

Thank you all.

Best wishes.

Keep posting and giving us hope.

Love.

 

[Rexus]

Actually, I'd be willing to try Inderal again, since it's not nasty like Ditropan. It gives you confidence but leaves you really tired. Do you think I should try it again? It didn't work at all though stopping any sweating it was still there but really i was confident and talking and telling my mind?

 

[Sprawling]

Rexus, I did let the sweating interfere with my life. There were avenues that I would have liked to pursue yet didn't. Back in the day, nobody new anything about HH, we didn't have the internet, and we did not, or were not advised to use oral meds. Forget about Ionto, if it was around nobody used it. So instead of suffering and working for someone, I ended up working for myself. I forced myself to be more social and outgoing despite the sweating. The sweating was eating me up alive inside. Prior to the age of 19, I was pretty much a loner. I learn to be social despite the dripping. Not saying it was easy for me, it was not. The alternative was not doing anything so instead I did the best I could. What's worse than HH for me is chronic pain. I can now control the HH with ionto, chronic pain really affects and set me back. Yet another thing I must overcome.

Success is pretty much what you make of it. If you want to succeed in your father's business, you have to want too. Sweating or no sweating if you enjoy what you are doing, then do it, and do it to the best of your ability.