hyperhidrosis is it a disability??

[karl:-/]

Hi guys were all here for the same thing sweat.. I'm Karl I have generalized HH nd I've tried all the potions had a yr of potions nd promises. I couldn't handle it anymore nd I pushed to see a specialist BIG mistake. Ive had 2 ETS surgerys first couple of month were great then compensatory sweating began. stomach,back,chest all sweat,, also its had an affect on what I can eat Crazy i know... My point being its a physical condition, nd in my case its becoming a mental problem to. now I suffer from anxiety witch don't mix well with HH.. its like they feed each other, cry I want to work again but the stigma attached to sweating nd my anxiety towards how ppl my react is holding me back.. plus the benefits say I'm fit for work as I can move my limbs but their not seeing nd feeling wot I do! Any feed back or peoples opinions would be great. I want the medical board to realise hyperhidrosis isn't just a physical condition but a mental problem also for some people.. hope you understand what I'm trying to achive...

 

[karl:-/]

I see I've had a few views but sadly no opinions, all I kinda want is the ability to bring this site nd my findings to the medical boards attention. With true, real accounts of people's lifes with HH like be brutal no names have to be mentioned aslong as your post back I can print off and like a portishan forgive my spelling, hand this over along with some kind words of my own and finally get HH on the disability list. Let's get people who suffer the real help they need and stamp out these fakers on benefits... I can't do it by my self please support me :-( :-/ :-i let's turn our frawn into happiness

 

[chloe909]

hey karl, i feelya. don't really know what you are asking us to do, like make or sign a petition letter? either way, i won't be able to sign because i don't live in the U.S.
i'm from asia. i think people here read it, but sadly, MAYBE the realization is that, if the government doesn't profit anything from it, if pharmaceutical companies don't profit anything from an illness, disease, condition, that doesn't benefit them (bring in dough), they won't bother. if anything they might even lose money. to shed light onto something like this takes time and effort, and effort equals government spending.
i know exactly how you feel because i feel too that my HH has caused me anxiety and occasional depression. it's a sick cycle and yes you're right, one feeding the other. it's horrible just imagining it. i'm pretty sure that my anxiety as a child, being scared all the time and at one point getting bullied, triggered the HH. which i know has already been there since my mom has HH aswell, but it just kept growing. and so i know what you're talking about. hope you read this and understand my POV =S

 

[karl:-/]

I totaly see all your points and fully understand your comments that's the bitch about any government they take your cash but don't seem to want to put anything into their country's people. But if i think like that its just giving up, I'm asking for people to post about their case of HH nd if its ok for me to print off as a part of research, maybe it will help with my goal.. maybe not like you said. But England might just be that bit different

 

[chloe909]

oooh your'e from england.. Oookay well that changes the situation LOL. I thought you were from the U.S. haha. I hope you get somewhere with that. Well for me, you're more than willing to get whatever information you want from what I posted. You can check too with the rest if they'd be willing. But I doubt that nationals from outside of U.K. can contribute much because we'd be classified as non-citizens. In short, they won't give a F about non British people haha. It's you guys that's paying UK taxes, and getting UK medical care, not us lol.

 

[karl:-/]

Your well on form chloe, true yet again but I'll try anything to get this sorted maybe not help from USA but as their are countries part of the e.u I can only turn my efforts into a protest in all communication breaks down haha why be united if we can't help each other like this? I like how you wrote you post to classy/witty very British lol x

 

[patsydell]

Greetings!
If HH is not a disability it should be. I have been physicalled disabled for years due to my spine then I was diagnoised with Hep C do to a blood fusion. My HH is more of a handicap in my life over all the other health issues combined. If they can give diability for alcohol,drug addicts, chronically obese, they should give it for HH. I am for you!! Go for it!

 

[DaveC]

Hi
I agree HH is a disability and am from England
HH has stopped my career progression and social life reduced as well.
I had ETS for facial sweat. Difficult on trains, work meeting and shopping. After ETS it improved but CS on chest. I used probathine which worked ok, but just been advised manufacturing issues. Anyway Karl have you tried medical drugs to reduce CS? Also anythoughs how to start to try to make it a disability?

 

[karl:-/]

Thank you so much for understanding my point.. only problem is I'd need more people to come forward like an online petition
so I can show the medical board on my next medical..

I don't know what would come of it but as you say its a crime against our human rights that obese people,alcoholics,drug addicts are able to claim medical nd D.L.A.

You've made my day

 

[Hytuu12345]

I might not be admitting that I've got Some mental issues, but as I take a step back and look at myself from a different View, I realised that on most occasions I refused to go out and have fun with my friends. Im losing out all those wonderful times I could've spent with my peers because of my sweaty palms. The fear of having them find out that I suffer from that embarrassing problem. So far I've only shared my problem with 2 friends. Also, I refuse to go ours with my parents on weekends(probably less than 10 times in the last 2 years) because of my HH. I feel that I'm throwing my dad's face and embarrassing him when we go out together, if someone finds out about my HH. I would love to spend quality time with my parents but the embarrassment is holding me back. Hopefully, after im able to get dry palms, I will be able to spend more quality time with them.

Also, I just want other HH sufferers to know that I know I might be making my sweaty palms and feet look like a big deal as compared to others who have conditions which are worse than me, but I'm not. I used to hate my parents because of my condition, but I now know how fortunate i really am.

Hope I didn't offend anyone or anything, just wana share that I really thought I was the only one suffering, but now I realise that there's so much more people like me.

 

[mattbarneswillkillu]

I see I've had a few views but sadly no opinions, all I kinda want is the ability to bring this site nd my findings to the medical boards attention. With true, real accounts of people's lifes with HH like be brutal no names have to be mentioned aslong as your post back I can print off and like a portishan forgive my spelling, hand this over along with some kind words of my own and finally get HH on the disability list. Let's get people who suffer the real help they need and stamp out these fakers on benefits... I can't do it by my self please support me :-( :-/ :-i let's turn our frawn into happiness

I made a thread last year, I believe it was titled "Just Another Day". It gives a brief account of what my everyday HH episodes were like on a day-to-day basis. I could continue you thread if more people are interested but most of the stories ended similarly, in sweat, so any suspense would get rather predictable.

I would really like to make a video to expose my facial HH because it would truly show how dripping sweat from creating harmless small talk with a stranger can complicate things.

 

[BertaNYC]

Hyperhydrosis is without a doubt a disability. Many physicians have no clue about this medical condition, and if you an older female they will just blame it on female hormones. I have tried Black Cohosh, Neurontin, acupuncture, Chinese herbs, Promensil, Valium and Effexor without one bit of dimishment of my sweats. I have the craniofacial HH. It is so debilitating, and I cannot work or have a social life at all. I never go on vacation, I stay home all day in air conditioning.
I was a health care professional and there is no way I could continue with my profession. I know without batting an eyelash that this is a disabilty and it should be acknowledged as one.
I live in NYC and see a specialist in HH, I am on Glycopyrrolate which seemed to help in the beginning. For approximately 2 weeks I felt reborn and had an upsurge of energy, wanting to do things I had not done after this curse came into my life. It was short lived though. HH controls our lives and unless someone has it they could never ever comprehend how incompacitated one becomes.