The textbook symptoms of OCD are not the whole story

MaxineRyder

Active member
I have a type of OCD which I finally understood to be Obsessive Compulsive Spartanism.

For more than thirty years I suffered in embarrassed silence, not sure what was wrong with me. I suspected it was OCD, but my particular symptoms were documented in none of the textbooks on the subject. I didn’t clean or check, and I certainly didn’t hoard. What was wrong with me?

By age 16 I was so desperate for help that I began starving myself. By age 18 I was admitted to a psychiatric hospital for anorexia and bulimia, and that’s when I first attempted to explain that I was constantly bothered by the presence of stuff in my room. That I had to have specific numbers of everything, but that I could never quite decide what those numbers should be. I felt silly saying all this, and the look of pure cluelessness on the doctor’s and nurse’s faces only served to amplify my isolation.

Years of self abuse, self harm, excessive drinking and depression followed. I spent hours in libraries and bookstores trying to understand what was wrong with me, but still found nothing. Then came the internet. I searched and searched and came up empty handed.

One spark of joy, the only thing that kept me alive all these years, was that of the twenty plus mental health professionals from whom I sought help, one prescribed SSRI medications and I experienced enough relief from my symptoms so as to be able to function (somewhat) in life. Seeing how much relief I got from SSRIs, I became more convinced that I might indeed have OCD. But still none of the literature covered my specific symptoms. So I continued my journey through life alone and frustrated.

And then it happened. Thirty years after my admittance to the psychiatric hospital for an eating disorder, I was in an forum, not unlike this one, listening to everyone describe hand washing and hoarding for the millionth time, and as usual having my posts ignored by everyone, when suddenly one angel popped onto my screen and said those magic words. “You have obsessive compulsive spartanism.”

So I looked it up. There isn’t that much information on obsessive compulsive spartanism. But it is there, and it is OCD. Finally I had a name for my condition and I felt, for the first time in my life that I could talk about it.

The moral of this story is that OCD is more than just the textbook symptoms that are rehashed over and over. But many sufferers are never made aware of this. And many people suffer alone and in silence, unaware that they are not alone in suffering from a well know condition that can be treated with SSRI medications.

I wish that the OCD community would be more open minded and understand that we do not all fit into a neat little box. Certainly the majority of OCD sufferers experience the most well known symptoms, but their’s is not the whole story of OCD, and any responsible educators on the subject have a duty to leave no sufferer in the dark.
 
I think i have a rare form of anxiety, not expressed the most typical way. I can go on with life if i have anxiety, but its more complex than that. The reason i think its anxiety is when i am completely CALM, all other symptoms go away (so far). There is one big symptom that has influenced my life (dont want to mention here). The opposite of anxiety is calm, although in the pass, when i did experience anxiety, I Never had this major symptom. Its really complex (I guess) but my guess is that its the UNTYPICAL symptom is caused by anxiety. Also, someone else on this site with same problem went to an online doctor. The doctor says it may be "anxiety, although a rare form"...

Glad that u can finally start healing! Good for u.
 

Hoppy

Well-known member
Good luck for finding the name of the demon. Now you can fight it.

I have some aspects of OCD, and I am still struggling to get my mind about it.
 

Barry1979

Well-known member
I have a different type of OCD than most understand as well. People just assume that OCD is counting, handwashing, cleaning, reopening door knobs until it feels right, rituals (non of which I have) and all that stuff because that is all they see on the television. I am fully educated on OCD and there is not too much about it someone could tell me that I would not understand, I have been round and round with it for years.....various thoughts/obsessions and so forth and so on. I have always said this and some agree but some dont: I dont think someone who has never had OCD themselves can fully understand it, all these therapist and Doctors go by is what they are taught in their schooling and so forth......in the process they here lots of the same types of stories with patients coming in through their doors and just assume that for the most part that is all there is to it.....most probably too embarrassed to tell them their true thoughts and feelings. This may sound very arrogant but no doctor AT ALL is going to be able to tell me more about OCD than I know myself because I live it everyday, they don't. I would be more likely to listen to someone who actually has OCD than any Doctor out there who doesnt.
 
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razzle dazzle rose

Well-known member
Isn't it just great to finally have a name for it and know you are not the only one? I also have a lesser known kind of OCD, and I didn't know what it was I was doing until years after I began. It was such a relief to know I was not alone. Suffering in silence is the worst; but thanks to the internet, and forums such as this, more people are becoming aware. Unfortunately I knew more about my condition than the shrinks I saw for it; the good thing is that now I have a handle on my OCD and am doing very well with that aspect of my life (I spent years researching and trying different things until I found a method that worked for me). I am thankful I no longer have to deal with that monster (well, for the moment being; I understand that the symptoms may come again unexpectedly...) May I ask what medication worked for you?
 

razzle dazzle rose

Well-known member
This may sound very arrogant but no doctor AT ALL is going to be able to tell me more about OCD than I know myself because I live it everyday, they don't. I would be more likely to listen to someone who actually has OCD than any Doctor out there who doesnt.

I agree. Reaching out to others with my same disease is what helped me overcome it. I still expected the doctors I saw to be helpful, to know of therapies that would work...all that fancy stuff they learn at school. Perhaps the doctors I saw were inexperienced but it was still rather disappointing when they had me wear rubber bands. I am my own therapist now :D But I am happy to hear that medication does work for some; it just never worked for me.
 

BazookaDream

New member
Ok,first of all,thnx for reading and I admit that I am not good at expressing myself in words so you may find what I wrote below a bit weird:

I don't have OCD related to hygiene (in fact I am actually quite an untidy person lol) but I suffer from what I think are OCD rituals.
My thoughts almost always randomly wander around saying "if this happens then it means that it is a sign that something bad will happen blabla"(as if there are some sort of spirit listening to what I say and manipulate things to go accordingly to what will happen),then sometimes in order to counteract it,I would say in my mind "ok,now if I can do X,then what I might have accidentally said just now would be invalid",then I will try to do the said thing or I will "dare" myself and try to "fulfill" the condition of "the deal"(to prove that it is false) ,sometimes I feel guilty especially when I "dare" on something that involves other people.And quite frequently I don't exactly remember what went through my mind so I am not sure how to overcome the anxiety.

Is this OCD??Or something worse???Because sometimes I wonder if it might be true,you know could I accidentally curse something by thinking bad about it or by Law of Attraction especially if the "bad conditions" happen several times in a row???Give some advice.thnx
 

razzle dazzle rose

Well-known member
My thoughts almost always randomly wander around saying "if this happens then it means that it is a sign that something bad will happen blabla"(as if there are some sort of spirit listening to what I say and manipulate things to go accordingly to what will happen),then sometimes in order to counteract it,I would say in my mind "ok,now if I can do X,then what I might have accidentally said just now would be invalid",then I will try to do the said thing or I will "dare" myself and try to "fulfill" the condition of "the deal"(to prove that it is false) ,sometimes I feel guilty especially when I "dare" on something that involves other people.And quite frequently I don't exactly remember what went through my mind so I am not sure how to overcome the anxiety.

Is this OCD??Or something worse???Because sometimes I wonder if it might be true,you know could I accidentally curse something by thinking bad about it or by Law of Attraction especially if the "bad conditions" happen several times in a row???Give some advice.thnx

That is OCD behavior but it is not necessarily OCD. Many people have OCD tendencies or quirks (obsessions or compulsions) but it becomes a problem when it interferes with your life or causes significant distress. Can you share some examples of these "dares" of yours?
 
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BazookaDream

New member
That is OCD behavior but it is not necessarily OCD. Many people have OCD tendencies or quirks (obsessions or compulsions) but it becomes a problem when it interferes with your life or causes significant distress. Can you share some examples of these "dares" of yours?

Thnx for replying,like for example,
1)I accidentally in my mind says that if I reply someone in a chat ,something bad will happen to someone,then I dare myself to do it (sometimes) ,then if the next morning nothing bad happens,then I assume(not 100%) what I said in my mind is "invalid" ,as in no supernatural being/mysterious laws of the universe heard what I said or just plain ignore me because there are no such rules/they know I have these OCD-like problems etc.

2) Another example "Ok, If I lost this competition,something bad will happen if I compete again",another voice "no,override that!!",after that "alright if I wear this shirt(example) in the competition ,then no matter if I lose or not,it doesn't count"
But even if I lose while wearing that shirt I feel that maybe God or some divine being is trying to tell me something like "don't do this thing again!!"

I think my problem partly stems from scenarios in movies and real life"
1)::flips a coin:: if heads I should do this /if heads this will happen",
2)people cursing another "You will get X(something bad) you ##$%^@#@#@%@!!!!!"" It is somewhat a taboo in my society to say such things ,fearing that should it happen,the person who curses is responsible.
3) Some divine beings trying to tell or guide me by the outcomes of the conditions I imposed.(Sometimes I say "override it" but sometimes I forgot/too late to do so)
 
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greenghost23

New member
There are many things I am afraid of happening that when I say it out loud, does not sound very probable. However, many of these things only need to happen ONCE to be very dangerous. This is why I worry so much about them.

Example 1) The OCD part of me makes me think that I really have HIV. I think this because I have a problem with acne and constantly have open sores on my face and back. I am constantly popping zits on my body, and having to wipe them with tissue paper and paper towels. There have been many cases when I have used public toilet paper and paper towels in order to do this, which makes me think it is a strong possibility that I have contracted HIV.

I am so meticulous with my process of popping zits now, which in a way does not make sense to me because if I did indeed get HIV already then the next situation of me popping zits does not matter. However, interestingly enough, I feel like the next situation in which I am popping zits is the critical and most important time my OCD attacks me. When I am popping my zits, I do not worry about the other 1,000 times I did it in the past. I only worry about it this time, and all the anxiety that my OCD causes me falls on this particular situation.

My OCD has this really interesting nature to it, where it seems to attack me on one particular thing at a time – only ONE. It will eat me to death about one particular anxiety- for example, I have HIV, for say five hours until it shifts to something else to feed on. I really feel like OCD is an animal that attacks me mentally. It is almost like a leach, it attaches to one thing and does not let go. Even when I try to avoid that certain thing, which in this example is having just contracted HIV, it does not let go. Notice reading this that I do at this moment reading this have the OCD feeling within myself that makes me feel I have HIV – because my OCD makes me feel like it is quite logical that I could have contracted it.

One of the biggest types of therapies that therapists for OCD suggest is EXPOSURE THERAPY – attacking the cycle that OCD seems to feed on. For my case, exposure therapy would be recognizing the obsession and NOT acting on the impulse. This produces great anxiety for me. However, exposure therapy for me is not the same as everyone else. A typical exposure therapy example they show online is someone with a door lock:

Obsessive Part) People feel anxiety that they did not lock the door when they really did (I used to have this when I was about ten actually).

Compulsive Part) Go check the doorlock again and make sure it is locked. This causes temporary relief, which will then turn back into a fear that the door is not locked. This starts the Obsessive Part over.

Now, I included this example because the Exposure Therapy for the HIV example I currently have is more complicated. See example:

Obsessive Part) I have HIV

Compulsive Part) Blank

*** The compulsive part is blank here because washing my hands will not do anything to get the HIV away. It’s more like I have HIV. And that’s it. And I feel like that anxiety will never end.

I have this fear when I am popping my zits that somehow someone else’s blood will get inside my open sore and give me HIV. Because I have to pop my zits in a public restroom at school, I feel that one way or the other something can get on my hand or onto my open sore, either directly or indirectly. This causes me to check my hands and fingers very meticulously while I am popping my zits – because I believe that all it takes I one time for someone’s blood to be on my fingers and then touch an open sore of mine to give me HIV (if it didn’t happen already). The problem with this is that there are so many situations I feel where I could touch something and then give myself HIV by touching my open sore. I can solve some things – replacing public toilet paper with my own (which I have), or using my palms to turn the sink on and off which I do. But this only causes me to think up new situations in which I could have slipped up and obtained HIV some how. It is never-ending and me solving one situation only brings up many other new ones.

Does any one feel this way?
 

Barry1979

Well-known member
I have been thought all the HIV stuff, hep c also and am still not over it... It creeps back up on me ever so often.
 
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