It is very frustrating, but then again most illnesses are. And i'm convinced it can be beat... Well those words are a bit strong, "i think it can be controlled" would be better. And i get those days two, the ratio of good to bad days is always changing. Like i have a really good week, then it all comes crashing down the next. I think SP is such a paradox cuz i hate it and love it at the same time. I hate how it makes me feel, how hard it makes my life, how painful it is. But then again, I love the insight i've received, The preception of this reality around me. And no, it's not true to say that we SP's alter the reality around us, or mold it in our own understanding so that we are in the position of being right: you know how we do: Criticize everything and everyone, thinking how oblivious every 'normal' person is, blindly living there lives, socializing and talking about nothing!! Some might say we do this to make us feel like at least we are in the right (making it a defense machinsim), but i disagree. People are lost, The majority is always in the wrong, because norms are the easiest to accept. The foundation of this world we live in where we work and spend and talk is NOT THE RIGHT PATH!! People are mislead and they dont even know it... What ever happened to spirituality, Peace with the mind, body, and soul- love of nature, personal mystical experience of the supernatural forces of this world? That is the reason why we are here, and people dont know it anymore, Not to work, and buy "toys" and talk about football games... these are all illusions. The world is full of pain and suffereing but to most, this is nothing more then a News Headline that is read and thrown away.
That's what makes it hard to deal with people and look them in the eye (they are fake).. I want real emotions, i want real conversations. They say we can never fully feel with others because communication is an illusion : your idea of "love" is different from mine. Or as Alford Huxley put it:" We live together, we act on, and react to, one another; but always and in all circumstances we are by ourselves... Embraced, the lovers desperately try to fuse their insulated ecstasies into a single self-transcendence; in vain... Every human group is a society of island Universes...
Basically, we can never fully share our experiences, not even through communication; we can get the idea but never truly know...
I'm pretty sure most of you who are conscious of their SP, have realized this about the world, and have felt pain, as well as joy (never taking joy for granted again)... But what im convinced of the most is that each and every one of us, has learned compassion (even if you havn't realized it yet). Have you spoke to anyone who was sick or in pain, do you realize that they relate to you more, and open up to you? Well i have.. And these are real emotions, real moments... Where is compassion in our world ? it's rare... through this pain, we've learnt of compassion, and once we are able to control the pain, we are stronger then ever. You are the ones who shake the world.
I apologize, i went on for too long and i hope i didnt bore any of you let me just end with this (and again im sure many know this; i'm sure it works) but the only solution is:
1)Know yourself fully (strenghts and weaknesses ) :Know Thyself
2) love and respect yourself: To thine own self be true.
3) Keep physically and mentally healthy: Meditate, breathe, focus on your body.
4) Try to see the Good in people.
5) Always look for the beauty in this world, no matter where you are... (i.e. the crowd of people dancing in unison at a rave with the flamboyant light projections bouncing off their bodies has some beauty in it, if you look for it)
Again i could be wrong, and this might just be what works for me ( and it is working), but give it a try... All i know is that as former ardent atheist, with severe SP, depression and suicidal tendencies, i've naturally witnessed the truths mentioned in the sum of worldly religions and all this was due to the pain and suffereing I, we all went through. They all teach these things and most people take them for granted, you know, like "i've been taught them, o.k. what the hay, i'll believe them". No!! We have experienced them first-hand and if you can learn to go past the pain, No one can tough you... (it is a gift in disguise. You must not falter)