Can anyone relate to this? -HELP!!

[Tina_55]

2 years ago I suddenly began to have excessive sweating in different areas of my body. Since then I mainly suffer from sweating in the feet. I 'diagnosed' myself with HH have been doing iontophoresis for over 3 months. The skin on my feet are extremely dry/cracking, but I feel like my feet are still sweating. Is this possible to have extremely dry skin but be sweating at the same time?? To be honest although HH bothers me the odor is what bothers me the most. When I'm just wearing socks I don't sweat as much and there is no odor at all. But once I put on shoes and sit in an office for a bit the odor fills the room. It is extremely embarassing to have this odor as I am a bit of a "germaphobe"/neat freak and it is affecting my work/career. I've tried wearing brand new shoes but the odor is still pretty bad. I'm thinking about taking robinul but I'm not sure if I should since I only plantar HH. help I am so frustrated and depressed

 

[Artanis]

definately see a doctor about it... oversweating, especially when anxiety related, I think is treatable...

I can't remember the specifics but I remember reading about how oversweating is due to a chemical imbalance or something. I'm sorry that I can't remember the specifics but definately tell your doctor about it.

 

[Tina_55]

Thanks for the reply, I went to see my doctor for something else and mentioned the excessive sweating to him but he just said to use antiperspirant and laughed. ver since then I have been trying to manage it by myself. help, any thoughts on robinul?

 

[BiGz]

hi Tina one of the many areas I sweat from is my feet, fortunately I don't get an odor unless its my sandals or my shoes don't get the occasional wash. But I do have a friend who seems to get bad odor but he doesn't have HH. Someone on here mentioned having a zinc deficiency so maybe get a test. Stick with the iontherposis as I'm sure you will get somewhere with it. Maybe post what routine you use in case it can be improved upon?

A strong antiperspirant such as robinul should work well as it will help keep the bacteria under control which is what causes the smell

 

[klamm76]

Or try this.Its ment for your cind of trouble.And I also dont think you have HH.I know myself a couple of guys that complaining about smelly feet.But they do not have HH.

Funny thing is....I have HH btw.
That before I used the ionto I used to sweat very much in my feet/hands,but it didnt smell bad.

Here is the link

http://www.canadadrugs.com/otc/product/Dehydral+Cream/3061/

I also use this myself only on my fingertips,because I cant get proparly rid of the sweating on my tips only by ionto.So I am using combo now: ionto/and dehydral-cream for my fingertips,and it actually works

But as it is mention,its ment for odor feet,ecsessiv sweating on the feet,and its not expencive either.But the tubes are wery small:/

But I agreeing whit BigZ and Artanis,

I also think that it can be a chemical imbalance.Have heard about zink,but will also mention magnesium.But I will not recomend you to just by this things in a healt store or something,and swollow them like candy.I think its more complicated than that.Maybe U must also have other things in or out of your body,so the things you need comes to the right places.So taking some testes first before you do something, is not a bad idea.

Just my advice.Whish U the best.

 

[Tina_55]

hmm I am pretty sure I have excessive sweating because by the time I come home from work my socks are drenched. Gross I know, but true . To be honest I am not sure if it is due to HH or some other underlying problem, when my sweating problem started I also had other symptoms at the exact same time. My symptoms have been feeling extremely fatigue, losing weight, stomach issues, hair loss and excessive sweating. I went to my doctor and had some tests done but he couldn't find anything. I was sent to a few specialists and they couldn't find anything, so I wasn't recommended any treatment. Everytime I see my dr and complain, he tells me that all the tests always come back negative and there is nothing he can do. Ever since then I have been trying to treat each of symptoms on my own, along with seeing alternative doctors. But nothing seemed to work 100% yet. I spend a lot of my free time researching on the net trying to treat myself. I *REALLY* appreciate all of your comments and suggestions!!

BigZ: My iontphorsesis treatment I've been doing for about 4 months, every other day, 1/2 hour each foot at about 25mAmps. It has made my sweating decrease by 30% so I still continue this routine. The odor from my feet is mostly when I have shoes on, like a soaking wet shoe smell as opposed to a 'cheesy' feet smell... if that makes sense. When I remove my shoes, my feet itself doesn't smell. It's really weird, but thanks I just bought a 50mg supplement. I'll try it and hopefully it works!! Is robiunl an antiperspirant? I thought it was a pill? I actually went to a doctor (AGAIN) and tried to get a prescription but he said they don't have that in Canada. He suggested taking ditropan?

Klamm76: Do you know what tests I can take for chemical imbalances? I know this is very odd, but my doctor has given up hope on me and only sends me for tests or drugs that I propose to him, but has no more ideas of what to test me for or treatment. Any suggestions on what tests I can ask for? I tried the dehydral before I started iontonphoresis and it didn't really work, but maybe doing ionto and dehydral will work. Maybe I'll try magnesium if the zinc doesn't work after 2-3 weeks. Thanks.

 

[Sure_whynot]

Or try this.Its ment for your cind of trouble.And I also dont think you have HH.I know myself a couple of guys that complaining about smelly feet.But they do not have HH.

Funny thing is....I have HH btw.
That before I used the ionto I used to sweat very much in my feet/hands,but it didnt smell bad.

Here is the link

Dehydral Cream online - Canada Drugs your Canadian Pharmacy

I also use this myself only on my fingertips,because I cant get proparly rid of the sweating on my tips only by ionto.So I am using combo now: ionto/and dehydral-cream for my fingertips,and it actually works

But as it is mention,its ment for odor feet,ecsessiv sweating on the feet,and its not expencive either.But the tubes are wery small:/

But I agreeing whit BigZ and Artanis,

I also think that it can be a chemical imbalance.Have heard about zink,but will also mention magnesium.But I will not recomend you to just by this things in a healt store or something,and swollow them like candy.I think its more complicated than that.Maybe U must also have other things in or out of your body,so the things you need comes to the right places.So taking some testes first before you do something, is not a bad idea.

Just my advice.Whish U the best.

Was everyone here actually diagnosed with HH by their doctors?
Because I sure as hell wasn't... and I sure as hell have it.

Its kind of offensive to undermine someones problem.

 

[klamm76]

Was everyone here actually diagnosed with HH by their doctors?
Because I sure as hell wasn't... and I sure as hell have it.

Its kind of offensive to undermine someones problem.

It took a while for me to get diagnosed because my doctor then havent even heard about it.

But I came/ argued myself in to a hospital in Norway to get botox in my hands.Think they took about 100-150 injections in each hand.But this was very loong ago (10-13 years).But i didnt work for me,maybe 10-20 % ,wasnt good enough.So I am only diagnosed in that way.That I came in to a hospital,so I am not sure what its saying in my medical rapport to my new doctor now?

But Im like U,,I dont need a diagnose today ,because I KNOW that I suffer from HH.

 

[klamm76]

Klamm76: Do you know what tests I can take for chemical imbalances? I know this is very odd, but my doctor has given up hope on me and only sends me for tests or drugs that I propose to him, but has no more ideas of what to test me for or treatment. Any suggestions on what tests I can ask for? I tried the dehydral before I started iontonphoresis and it didn't really work, but maybe doing ionto and dehydral will work. Maybe I'll try magnesium if the zinc doesn't work after 2-3 weeks. Thanks.[/QUOTE]

I dont wanna get in too something spesific,because I am not a expert on the area.I say this because:Yes I think there is some more test that you can take.But then U have do give a damn about your doctor,or try a new doctor.

But you have the alternativ medisin that for sure can take some test for you in a lab.But you know this can be very expencesive for you,you have to pay for everything by your self.And there is also a lot of bullshit out there in the alternativ things.Like healing f,eks.I dont say that some of them arent very good and actually can heal,but there is a lot of people who is a scam to ,and can easaly take advantage of your desperation.And suck money out of you!!

But if I would suggest something to take more testes of you,because I still dont think you suffer from HH based on reading what U have wrote in here.

I will say this in norwegian,and hope U understand,if not ask me again.And I will try to find the english word for the terapeut for you.

Maybe you could try a homeopat,or bioresonans,or a terapaut that have a clue about what kind of food you should eat etc.And maybe they can,take some more test of you and send to a lab.

I myself took a hair analyses,and got a mineral/vitamin pills that was specialy designed for me.I didnt take this because of my HH,but another medical problem I try to find out of.The cure lasted for 3 mounths and I swollowed 35 mineral/vitamin pills every day .And I didnt notice any differnce for my problems/condition,and it was expensive to.My hairanalys was sent to Texas in the U.S.Sorry but I dont rember the name..

I also resently took out all my silverfilling in my theet,because I think that it is poisin for my body.I think that quicksilver is on of the most poisening nervedamaging thing you can have in your body.But most part of the population tolerates amalgam/silverfilling in the mouth.

I DONT reccomend you to do this.My story is too loong to tell why I did it.But I went to a special dentist,that was an expert on the area.Just mention it,becuse I have spent a loot of money the last 3.5 years to find out of my healthproblems.

But as I said,since I dont think you have HH,maybe you need something,or have to get rid of something in your body system,and I think that U can be helped by this,because it sound for me that U have an chemical imbalance.And not HH,as mentioned earlier.

But be careful!.Do your homework first and dont take the first terapaut you meet for grantet,and trust him and spend your money away.Take a few calles to different persons,and tell them about your problem.And try out the thing that your stumach feeling is telling you.You have nothing to loose,accept from money then.But if U get helped ,I think that you am like me.That money cant be compared whit good health

Excuese me for my englis btw,its not my native langued.But hope that U understood the most part?

Oh another thing,why I mention magnesinum.

I have a brother that have a friend that sweated alot in his hands and feet.But not the same as me.He also sweated up his legs to.He tried out something called nevridix from a healthstore/natural medicine.And in nevridix it was magnesium.Point is.He got rid of his sweating,so I offcourse tried this for my self.But it didnt help me.But I think in his case it was more an anxiety problem,and magnesium is supposed to be good for the nervesystem.I think it calmed him down or something.Dont know????,but it worked for him.

You also have detox spa that is suppose to "clean" your body for toxics,heavymetalls etc.

You just have to do some reasearch by yourself,if the doctor cant help you.Im sure you will resolve your problems at the end

Good luck

 

[margiehope]

Hi Tina!
I'm no doctor, but has yours tested your blood sugar levels? Fatigue, weight loss and heavy sweating can be signs of diabetes. And of lots of other things, of course.
The ONLY Canadian version of glycopyrrolate is called "Avert". It's only available from one source--google Avert +Canada and you'll find it. (I was really rudely flamed for "advertising" a while back!)

Wish you luck!

 

[margiehope]

Actually, add glycopyrrolate in that search--or (potential flamers be damned), just go to pharmacy.ca.

 

[BiGz]

Sorry yes its a pill I was confusing it with something else but I guess you have tried strong deodorants

 

[Tina_55]

Is there anything wrong with this routine for my iontphorsesis treatment I've been doing it for about 4 months, every other day, 1/2 hour each foot at about 25mAmps. (switching the polarity after 1/2 hour) and it doesn't seem to be working. I'm currently using plain tap water, and stainless steel pans.

 

[Jezza]

On the diagnosis issue; I've had the test where they put starch and iodine on your hands or axillae a couple of times, if it colours (badly) then you officially have HH. However this test is pretty crude and since they don't know what blood values to look for the diagnosis of HH isn't anything more than identifying the symptom. Other diseases you can find some known blood level anomalies but unfortunately that ain't happening yet for HH. Unfortunately because it could help in treating this mess...

Tina, tests you could do (if not already done) are of course thyroid, cortisol, pheochromocytoma (catechols), carcinoid syndrom (urine 5-HIAA/plasma chromogranin A), PTH (for hyperparathyroidism), ADH for SIADH (resulting hypernaetremia can lead to excessive sweating among others) and other markers for neuroendocrine tumors, like gastrin (gastrinoma) or VIP for VIPoma (the latter is very rare though so if you have a reluctant GP, which is mostly the case with HH, I would start by suggesting the other ones). On www.sweathelp.org there is a list of known secondary causes for HH, you could check that out as well.

I've had a couple of these done --> thyroid showed elevated TSH, but still quite high T4 which is inconclusive, twice.
Cortisol was elevated after dexamethasone suppresion test and slightly elevated once in urine test (48h, first 24 ok, 2nd elevated), but saliva was ok...and I lack classical signs of cushing's except sweating and arguably some other things --> inconclusive
Catechols were ok twice (even slightly low on one occassion), so no pheochromcytoma.
5-HIAA was ok once, waiting for a chromogranin A test, but I don't really think it is carcinoid syndrom anymore.

The other tests I have not yet done, since it is not completely up to me, I have to convince the doc of the potential of these tests being helpful all the time, since it is HH we are talking about. Since the doc is an endocrinologist (nothing goes through the GP here in the Netherlands, they send you to the specialist and from there on you have to deal with them, which is a time consuming thing).

Personally what I'm thinking about is still the thyroid thing, ACTH/cortisol (since these have at least shown some weird results) and then ADH...Anyway, it would be great if everyone with HH pushed there docs for as much testing as possible because we could find some common things which tells us more about the cause of HH. Seeing as though so many different people still have the exact same symptoms it looks a lot like a neuroendocrine disorder to me...

 

[klamm76]

Is there anything wrong with this routine for my iontphorsesis treatment I've been doing it for about 4 months, every other day, 1/2 hour each foot at about 25mAmps. (switching the polarity after 1/2 hour) and it doesn't seem to be working. I'm currently using plain tap water, and stainless steel pans.

Dont wanna come with a long answer this time.I am confused if you have HH or if its something else as mention before.Based on what you have wrote.

But as long that U are taking iontotreatments.There is 2 things you can try out.

1. Try to slow down the mA to 10-13,instead of 25mA.This worked better for me.Ill think that overdoing it,can also be wrong.

2.Maybe the water is to soft? I only use tap water myself,but maybe I have just been lucky whit the water?Or if it is something to it at all.Just heard that other peole have had more sucsess with hard water then soft.Try water from the supermarket,or take a call to the watersuppliers and ask if the water is hard or soft?

Last.Wich ionto device are U using? I use idrostar,but have tried out drionic for over 10 years ago,and that device was crap compared to Idrostar!Did almost nothing for me.

 

[Tina_55]

Thanks klamm76, I really did appreciate your long answer I actually agree with you and think there is 'something else' wrong with me. But I have been suffering with for 4 years no with no diagnosis and am getting very frustrated. While I try to figure out what's wrong with me, I want to treat the sweating because it is really affecting my work life. I don't know if I'll find out what's wrong with me and how long it will take to find the real problem.

As for iontophoresis, I thought the higher the mA the more effective the treatment was? At least that's what the person giving me the treatment told me... but I have little confidence in the medicial people anyways so maybe you are right. I'll give it a try at 10 mA and maybe add some table salt to the water?

I used to get treatment from a medical person but it was costing too much $$$ and had no results (I think is was a Fischer). I am now using a homemade one.

 

[klamm76]

Thanks klamm76, I really did appreciate your long answer I actually agree with you and think there is 'something else' wrong with me. But I have been suffering with for 4 years no with no diagnosis and am getting very frustrated. While I try to figure out what's wrong with me, I want to treat the sweating because it is really affecting my work life. I don't know if I'll find out what's wrong with me and how long it will take to find the real problem.

As for iontophoresis, I thought the higher the mA the more effective the treatment was? At least that's what the person giving me the treatment told me... but I have little confidence in the medicial people anyways so maybe you are right. I'll give it a try at 10 mA and maybe add some table salt to the water?

I used to get treatment from a medical person but it was costing too much $$$ and had no results (I think is was a Fischer). I am now using a homemade one.

Hi

I dont wanna get into the details if U have HH or not again?

But I just wanna say,that me to took high mA in the beginning.Think it was as you over 20 mA at least, I remember.And off course I tought the same way as you, and your medical person.

It was only common sense for me to think that the higher mA,the better result.But as I said,for me this was wrong.My iontotreatments is more effective whit 10-13 mA then 20-25.I would also suggest to you that maybe U dont need to take ionto every day,or every second day.Maybe you can wait 3 days between all the treatments.To the sweating stops by 90-95% as it did for me.

Now I only take 1 treatment a week,but its very important to not skip that treatment.Then you have to begin all over again.Some people maybe need 2-3 treatments a week after they have got the result they wanted.So I consider my self lucky compared to them.

I dont get rid of the sweating in my fingertips,but as mention in many of my post before.That did dehydral-cream take care of.I use this only for my finger tips 2-3 times a week before bedtime.Find this as a better solution then take more time consuming iontotreatments every week!

Fisher I think is a good device,actually I think all devices are good,accept from Drionic, based on my personal experience.It was,and probarly still is crap!

Homemade devices I dont know so much about,but maybe this also can be a reason for its not working for U?.But U said that you tried out Fisher and that didnt work for U either? Then I can understand why U dont wanna buy a expensive device.1 thing is for sure:If ionto is working, its better to buy a device.Taking iontotreatments in hospital,etc is more expensive an more time consuming.So on the long term it much better to have your own!

How long did you try out Fisher then?

Thanks for the appreciation by the way.But it should only be fair to.

Im in here to get help,and give help.And hope the rest of the gang in here think the same.Its no reason to sit and hold on to information that maybe can help others!
Nothing is to weird or stupid to ask about when it comes to HH.!....HH is weird and a riddickuless and stupid diseas.!!!!!!! Dont know if I gonna cry or laugh about this shit sometimes?

 

[HH]

Maybe cut back on treatments- try just twice a week and on around 10mA-try it for a few weeks and see if anything changes, you may be overdoing it. Also the water could be poor quality-do you live in a hard water area?-I'm from east anglia and the water is perfect-very hard.

Have you tried any odor eater type things for your feet? Theres endless products out there for that type of problem

good luck