bill-uk
Well-known member
6 months ago or more, 'Lucy' came on this site and explanined that she was making a TV programme about our HH condition. Some of you you may remember. At the time I responded to her, saying that I would be happy to give her information about how HH affects us but I wouldn't be happy to appear in any programme personally. Well that all faded out as the money ran out for the programme.
Today, 6 months later, I received the following email from one of her colleagues at RAW television:
Hello Bill,
My name’s Jonathan, and I work at Raw Television. You very kindly corresponded with Lucy Cohen who was developing a Hyperhidrosis film back in November. Lucy has now moved on to pastures new (i.e. a new job) and I’ve inherited her research and contact list – hence my mail to you.
I just thought I’d update on the progress we’ve made with the documentary. Unfortunately Channel 4, who were the ones to initially express interest in the film, decided not to pursue it further. This was obviously a blow to us and all the people who wanted to tell their story, but such is the world of TV!
Luckily, we’ve had some more interest in the film from other channels recently, and I wanted to get in contact with you to see how you were, and whether or not you’re still happy to assist Raw with the film.
I’d really appreciate having a quick chat with you about how you deal with your condition and how it affects you life. At this stage there’s absolutely no pressure to appear in the programme, and anything you say is, obviously, strictly confidential.
From my point of view, it’s easier if I call you – so may I have your number, please? – but if you’d prefer to call me then my office number is…
020 7284 XXXX
and my mobile is…
XXX XX XXX XXX
If at all possible, it would be great to have a chat at some point today, but I understand if this is too short notice.
I look forward to speaking.
Best wishes,
Jonathan
My response was as follows:
Jonathan,
Having only picked up this email tonight at 23:30 it is obviously too late to talk. As I mentioned to Lucy, I think this is a very important subject as a sufferer of the condition as you might expect and it affects every day of my life. Fortunately for me, I am married and happen to hold down a fairly responsible position and fairly well paid job despite this, but it affects every moment of every day, even if those around me don’t always see it or understand. As the summer is coming it will get worse and I look forward to September and the cooler months.
If you were to meet me in my house, I would seem a pretty normal sort of guy, I probably wouldn’t be sweating and you would wonder what the hell is the problem and whether us sufferers are making it all up. However, if you were to see me mow the lawn, put up a cabinet, wash the car, go for a walk or eat a BBQ in hot weather you might see the sweat pouring down my face and literally dripping off my nose and chin when others around me are totally dry. I remember one day last August when I was washing up in the kitchen after a BBQ and my T shirt was totally soaked with sweat pouring down my face and I felt that life had dealt me an unfair hand. My wife and kids around me were totally dry, yet I was pouring out in litres .....
Anyway, dry tonight, and happy to talk in the conditions you mention. My home No is 01793 xxxxxx, work is 01793 xxxxxx and Mobile is 07930 xxxxxx.
Regards Bill
I await a response and will hope to deal with it in a manner that benefits us all. I will wait until I receive any response from Jonathan, but if any of you would like an input into Jonathans request, then reply below. Please mention whether you would be happy to appear or be quoted or whether you just want your experiences to be mentioned.
Until he answers, I cannot guarantee that this will go any further, but as he had contacted me then, I guess, that there is a good chance that it might ........
Regards, Bill
Today, 6 months later, I received the following email from one of her colleagues at RAW television:
Hello Bill,
My name’s Jonathan, and I work at Raw Television. You very kindly corresponded with Lucy Cohen who was developing a Hyperhidrosis film back in November. Lucy has now moved on to pastures new (i.e. a new job) and I’ve inherited her research and contact list – hence my mail to you.
I just thought I’d update on the progress we’ve made with the documentary. Unfortunately Channel 4, who were the ones to initially express interest in the film, decided not to pursue it further. This was obviously a blow to us and all the people who wanted to tell their story, but such is the world of TV!
Luckily, we’ve had some more interest in the film from other channels recently, and I wanted to get in contact with you to see how you were, and whether or not you’re still happy to assist Raw with the film.
I’d really appreciate having a quick chat with you about how you deal with your condition and how it affects you life. At this stage there’s absolutely no pressure to appear in the programme, and anything you say is, obviously, strictly confidential.
From my point of view, it’s easier if I call you – so may I have your number, please? – but if you’d prefer to call me then my office number is…
020 7284 XXXX
and my mobile is…
XXX XX XXX XXX
If at all possible, it would be great to have a chat at some point today, but I understand if this is too short notice.
I look forward to speaking.
Best wishes,
Jonathan
My response was as follows:
Jonathan,
Having only picked up this email tonight at 23:30 it is obviously too late to talk. As I mentioned to Lucy, I think this is a very important subject as a sufferer of the condition as you might expect and it affects every day of my life. Fortunately for me, I am married and happen to hold down a fairly responsible position and fairly well paid job despite this, but it affects every moment of every day, even if those around me don’t always see it or understand. As the summer is coming it will get worse and I look forward to September and the cooler months.
If you were to meet me in my house, I would seem a pretty normal sort of guy, I probably wouldn’t be sweating and you would wonder what the hell is the problem and whether us sufferers are making it all up. However, if you were to see me mow the lawn, put up a cabinet, wash the car, go for a walk or eat a BBQ in hot weather you might see the sweat pouring down my face and literally dripping off my nose and chin when others around me are totally dry. I remember one day last August when I was washing up in the kitchen after a BBQ and my T shirt was totally soaked with sweat pouring down my face and I felt that life had dealt me an unfair hand. My wife and kids around me were totally dry, yet I was pouring out in litres .....
Anyway, dry tonight, and happy to talk in the conditions you mention. My home No is 01793 xxxxxx, work is 01793 xxxxxx and Mobile is 07930 xxxxxx.
Regards Bill
I await a response and will hope to deal with it in a manner that benefits us all. I will wait until I receive any response from Jonathan, but if any of you would like an input into Jonathans request, then reply below. Please mention whether you would be happy to appear or be quoted or whether you just want your experiences to be mentioned.
Until he answers, I cannot guarantee that this will go any further, but as he had contacted me then, I guess, that there is a good chance that it might ........
Regards, Bill