Hello,
I have been hanging around ETS & Reversals for a while, and am new to this forum, which probably suits me better since I didn't have ETS albeit I was considering it. I have recently been diagnosed with an ANS disfunction/imbalance, were my Sympathetic Nerve System is overactive and causes blushing, palpitation, "fight and flight" etc. On top of that I have Generalized Hyperhidrosis, which make me sweat profusely head/chest/back/butt/legs in nervous situations, hot/humid environment and exercise. And I mean profusely. I guess you all can relate to the problems, so I don't have to give any examples of to which extent this can destroy lives.
What a wish to create here is a thread were everyone can share experiences with different kinds of Anticoholnergic drugs, i.e. Robinul, Probanthine, Ditropan etc. I am currently living in China and the hospital here didn't manage to provide me with Robinul as I wished, but instead they gave some Probanthine. It has been useful to a certain extent, but far from the relief I was hoping it to be.
A website I use to look up is "ask a patient", were patients using the drugs can rate it and give short comments about its effect. As for there, the Robinul seems to be way more effective than Probanthine. Is there anyone here who tried different kinds of antocholnergic drugs, and found one was more effective than the other?? Because I still have hope for Robinul, even though Probanthine didn't work as I hoped.
ROBINUL: Side effects, ratings, and patient comments
PRO-BANTHINE: Side effects, ratings, and patient comments
I also have some thoughts after for about a month. What I am eating is Probanthine, which might works in a slightly different way from other Anticholnergics (AN).
* First and foremost, most people are recommended to take AN morning, afternoon and before bed. In my opinion, this is a mistake of the Doctors, that as we all are aware of might not be that educated when it comes to HH. AN is originally to be taken for other problems, such as bladder disfunction or headaches, for which the body needs a constant refueling of the AN. In our case, what is the idea of taking the AN before sleeping?
Since most of AN is effective some 5-7 hours, the effectiveness would just have left the body when we wake up. And at least for me, sleeping is the only time ever when HH does not bother me. Therefore I've come to the conclusion that it's better to take a larger dose in the morning, a smaller dose in the afternoon and nothing before bed. That will keep you drier during the day when you need it, and still expose you to the same amount of medicine.
* I read in a post somewhere: "I haven't heard about anyone using AN the same way as Beta Blockers, only taking them before business meetings, shopping in hot weather etc." My questions is; why not? The medicine have about the same kick in and lasting time as Beta Blockers. Moreover, as we all know, body tends to build up a resistance to AN after period of usage. If you only take AN in the morning and the afternoon, your body will not be affected by the AN for abut 12 hours per day (sleeping, and late evening when afternoon dose effectiveness is gone. in the evening, the weather is cooler and one is usually at home relaxing). By not having AN in your body 12 hours/day, your body would most likely have a harder time building up this resistance.
* When the resistance is eventually being built up, would it not be an idea to switch AN agent? Taking Robinul one month, Probanthine one month, Robinul one month, Probanthine one month and SO ON. By doing this, the body would not have time enough to build up this resistance, since Robinul and Probanthine works in different ways?! This are mere ideas and thoughts. Comments, anyone? I have now the last days taking 2 pills morning and 1 pill afternoon and no one before bed. It makes me drier daytime, and no change when I am sleeping.
Please comment on your experience and let's get the best out of the AN drugs!
I also have a question: do anybody know about getting hand of Robinul in Hong Kong? Is it possible to ship Robinul to Hong Kong, or would it be available to purchase at place?
Thanks
I have been hanging around ETS & Reversals for a while, and am new to this forum, which probably suits me better since I didn't have ETS albeit I was considering it. I have recently been diagnosed with an ANS disfunction/imbalance, were my Sympathetic Nerve System is overactive and causes blushing, palpitation, "fight and flight" etc. On top of that I have Generalized Hyperhidrosis, which make me sweat profusely head/chest/back/butt/legs in nervous situations, hot/humid environment and exercise. And I mean profusely. I guess you all can relate to the problems, so I don't have to give any examples of to which extent this can destroy lives.
What a wish to create here is a thread were everyone can share experiences with different kinds of Anticoholnergic drugs, i.e. Robinul, Probanthine, Ditropan etc. I am currently living in China and the hospital here didn't manage to provide me with Robinul as I wished, but instead they gave some Probanthine. It has been useful to a certain extent, but far from the relief I was hoping it to be.
A website I use to look up is "ask a patient", were patients using the drugs can rate it and give short comments about its effect. As for there, the Robinul seems to be way more effective than Probanthine. Is there anyone here who tried different kinds of antocholnergic drugs, and found one was more effective than the other?? Because I still have hope for Robinul, even though Probanthine didn't work as I hoped.
ROBINUL: Side effects, ratings, and patient comments
PRO-BANTHINE: Side effects, ratings, and patient comments
I also have some thoughts after for about a month. What I am eating is Probanthine, which might works in a slightly different way from other Anticholnergics (AN).
* First and foremost, most people are recommended to take AN morning, afternoon and before bed. In my opinion, this is a mistake of the Doctors, that as we all are aware of might not be that educated when it comes to HH. AN is originally to be taken for other problems, such as bladder disfunction or headaches, for which the body needs a constant refueling of the AN. In our case, what is the idea of taking the AN before sleeping?
Since most of AN is effective some 5-7 hours, the effectiveness would just have left the body when we wake up. And at least for me, sleeping is the only time ever when HH does not bother me. Therefore I've come to the conclusion that it's better to take a larger dose in the morning, a smaller dose in the afternoon and nothing before bed. That will keep you drier during the day when you need it, and still expose you to the same amount of medicine.
* I read in a post somewhere: "I haven't heard about anyone using AN the same way as Beta Blockers, only taking them before business meetings, shopping in hot weather etc." My questions is; why not? The medicine have about the same kick in and lasting time as Beta Blockers. Moreover, as we all know, body tends to build up a resistance to AN after period of usage. If you only take AN in the morning and the afternoon, your body will not be affected by the AN for abut 12 hours per day (sleeping, and late evening when afternoon dose effectiveness is gone. in the evening, the weather is cooler and one is usually at home relaxing). By not having AN in your body 12 hours/day, your body would most likely have a harder time building up this resistance.
* When the resistance is eventually being built up, would it not be an idea to switch AN agent? Taking Robinul one month, Probanthine one month, Robinul one month, Probanthine one month and SO ON. By doing this, the body would not have time enough to build up this resistance, since Robinul and Probanthine works in different ways?! This are mere ideas and thoughts. Comments, anyone? I have now the last days taking 2 pills morning and 1 pill afternoon and no one before bed. It makes me drier daytime, and no change when I am sleeping.
Please comment on your experience and let's get the best out of the AN drugs!
I also have a question: do anybody know about getting hand of Robinul in Hong Kong? Is it possible to ship Robinul to Hong Kong, or would it be available to purchase at place?
Thanks