jabinda
Member
I have suffered from HH since the day I was born. I came out sweaty and have stayed that way. I am now 26 (and a girl!). Originally, I only had HH effecting my hands and feet. But, in Dec 2002, I had a ETS (removal of the T2 ganglia). Since then, I have been diagnosed with Raynaulds, put on a lot of weight despite exercise and healthy diet, my feet still sweat but they are also now always cold. But the worst of it is I now have horrendous sweating on my torso (front and back), groin area, and legs. So my life is hell.
I am servely depressed about it as it is debilitating in terms fo self esteem, socialising - forget a relationship, buying clothes that will hide the sweat and the list goes on...but I know many ofyou understand.
I am going back to the surgeon (vascular surgeon) who did the origianl op to see if there is any hope for my future. My biggest concern is htat there is nothing to do as I know the body needs to have a temperature regulation method and sweating is just that.
I also have gustatory sweating which is a major side effect of ETS.
If i had known back then what i know now, and am having to tolerate - I NEVER would have had the op.
I cannot tell you how many times I have cried myself to sleep jsut thinking about my current state, let alone my future. Every year it jsut seems to get worse and worse.
Thanks for reading my rant...if only people understood the condition and then tried to understand what it means to live with it. I hope you all are having a happier time with it.
I am servely depressed about it as it is debilitating in terms fo self esteem, socialising - forget a relationship, buying clothes that will hide the sweat and the list goes on...but I know many ofyou understand.
I am going back to the surgeon (vascular surgeon) who did the origianl op to see if there is any hope for my future. My biggest concern is htat there is nothing to do as I know the body needs to have a temperature regulation method and sweating is just that.
I also have gustatory sweating which is a major side effect of ETS.
If i had known back then what i know now, and am having to tolerate - I NEVER would have had the op.
I cannot tell you how many times I have cried myself to sleep jsut thinking about my current state, let alone my future. Every year it jsut seems to get worse and worse.
Thanks for reading my rant...if only people understood the condition and then tried to understand what it means to live with it. I hope you all are having a happier time with it.
