surfsider
Well-known member
read his website. he claims no side effects. for people with hand armpit or feet sweating. WHAT DO WE BELIEVE!!???
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Dr. Lin claims no compensatory sweating.
- Thread starter surfsider
- Start date
tbanner523
Well-known member
ummm....always get more than one opinion?
but take a minute and look at the bullcrap that is written.
it confirms a long list of reported side effects. then further down, it claims ets is a "very safe and mature surgical procedure", with the only reference being the number of operations that dr. lin has performed. does that really prove anything?
take a minute and think about it.
it confirms a long list of reported side effects. then further down, it claims ets is a "very safe and mature surgical procedure", with the only reference being the number of operations that dr. lin has performed. does that really prove anything?
take a minute and think about it.
Jezza
Well-known member
I believe that technically, it's a very crude procedure that provides no real solution. And moreover I think it would kind of suck when in maybe even 10-20 years time medications for HH will improve to the point that you can lead a fairly normal life with them and you would have had this procedure done in the meantime. Sure, 10 years is a very long time and if your in your 20s like me you're thinking I want to live now, not some time in the future, but the fact is you'll probably live a few decades more and you just might turn out to regret doing ETS every day. People who have done this 10-20 years ago really had no option, no real look out to other treatments and too little knowledge about ETS, but now because of the internet hh will get more and more attention and I think better things will come around. I think ETS will eventually be banned from use in hospitals. Right now it's something that I think is mainly done because it makes financial sense for hospitals to do it.
However, I STILL understand people choose to have it done; in that case I would advise them; make your doc just cut the nerve on the right side (or maybe if left is more important to you, the left side) of your body, see what happens. I've read from several people who did this that the results were ok that way, and you might limit side effects by not limiting your body's ability to sweat above your waist completely. However, I don't know what happens with heartbeat and stuff like that (if you have ETS on both sides, your heartbeat will typically not be able to get above 140bpm anymore, I don't know if that's the same if you cut one side).
grimaldi; slightly OT but how are you getting on with the glyco you got prescribed?
However, I STILL understand people choose to have it done; in that case I would advise them; make your doc just cut the nerve on the right side (or maybe if left is more important to you, the left side) of your body, see what happens. I've read from several people who did this that the results were ok that way, and you might limit side effects by not limiting your body's ability to sweat above your waist completely. However, I don't know what happens with heartbeat and stuff like that (if you have ETS on both sides, your heartbeat will typically not be able to get above 140bpm anymore, I don't know if that's the same if you cut one side).
grimaldi; slightly OT but how are you getting on with the glyco you got prescribed?
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Jezza: I will say it works only somewhat. I moved to Hong Kong last week, and the summer here is just u-n-b-e-l-i-v-a-i-b-l-e. Heat, humidity, crowds, speed, air condition streaming out heat to the streets, sun reflecting on the skyscrapers....
This making me sweat more than ever before. It's ridiculous, 10 min of regular walking and the stains are all over the shirt. Another 10 min and your jeans start to change color.
However, I am eating Probanthine which I suspect is not as strong as Robinul. Before I head off to school I take 4 pills (15 mg) on totally empty stomach, and then I do not eat until lunch. That, combined with a dry-fit linen under my shirt has been keeping the stains away even when we had outside sessions during afternoon (though my linen is wet, of course). On the way home though around 5-6 pm, I am soaked despite the underneath linen.
I reckon the afternoon dose of Probanthine is not as effective as the morning dose, since one have food in the body. So instead of eating more pills, I have decided to bite the bullet and sweat on my way home from school and then stay inside after I came home. Tonight though (Saturday) I will go out and watching a football game over a couple of beers, hence I just took four more pills. Will see later if this "evening dose" do the same use as the morning dose.
So to sum it up; the Probanthine does offer some help, but less and during a shorter time than I was hoping for. A good measurement of the drugs efficiency is the saliva; when you have less the drug work well, if it's the same the drug does for some reason not work as well. After my morning dose I had a very dry mouth for some 3-4 hours = works good. After my afternoon dose, my saliva is almost the same = doesn't work properly. I hope to get hand of some Robinul here in Hong Kong, will try to find time for a hospital visit during next week.
What about you?
This making me sweat more than ever before. It's ridiculous, 10 min of regular walking and the stains are all over the shirt. Another 10 min and your jeans start to change color.
However, I am eating Probanthine which I suspect is not as strong as Robinul. Before I head off to school I take 4 pills (15 mg) on totally empty stomach, and then I do not eat until lunch. That, combined with a dry-fit linen under my shirt has been keeping the stains away even when we had outside sessions during afternoon (though my linen is wet, of course). On the way home though around 5-6 pm, I am soaked despite the underneath linen.
I reckon the afternoon dose of Probanthine is not as effective as the morning dose, since one have food in the body. So instead of eating more pills, I have decided to bite the bullet and sweat on my way home from school and then stay inside after I came home. Tonight though (Saturday) I will go out and watching a football game over a couple of beers, hence I just took four more pills. Will see later if this "evening dose" do the same use as the morning dose.
So to sum it up; the Probanthine does offer some help, but less and during a shorter time than I was hoping for. A good measurement of the drugs efficiency is the saliva; when you have less the drug work well, if it's the same the drug does for some reason not work as well. After my morning dose I had a very dry mouth for some 3-4 hours = works good. After my afternoon dose, my saliva is almost the same = doesn't work properly. I hope to get hand of some Robinul here in Hong Kong, will try to find time for a hospital visit during next week.
What about you?
Jezza
Well-known member
Ah, I was under the impression you found a doc that prescribed you glyco, but I guess I misunderstood. Myself I haven't had any luck yet finding glyco myself. I have a lead on a doc that works with the med in the form of a drink but I could only get an appointment there is 7 weeks, so it will take some more time once more.
I've looked into importing Avert from pharmacy.ca myself, but it seems like you'll have to get all kinds of paper work in order for that as well. As my GP is on holiday right now I can't do that either.
I really think robinul/avert ie glyco is better than probanthine ie propantheline bromide, based on what I've read over the years. But even then there will probably be some hit and miss going on for severe HH sufferers. I'm just hoping that with the drug I can find some kind of regimen that it works well enough for me to take some control of the HH, possibly also in combination with ionto with glyco solution (either by crushing pills into tap water or ideally getting a solution prescribed, although the latter will be tough). There are some studies out there that claim quite good results with glyco + ionto, also suggesting that there might be some 'build up' in the treated areas, meaning the sweating subsides for a couple of days after a treatment in the treated areas (hands, feet), while the side effects de to systemic absorption subside after the first day. That is obvioulsy my main hope, because it could potentially mean you can limit the dosage you take orally for the rest of your body hh and improve the overall effectiveness.
But I won't know if all of this works for me as well until/if I actually get my hands on some of this medicine, obviously. I'm just hoping it will work as well as is being sad by some people who use it.
I've looked into importing Avert from pharmacy.ca myself, but it seems like you'll have to get all kinds of paper work in order for that as well. As my GP is on holiday right now I can't do that either.
I really think robinul/avert ie glyco is better than probanthine ie propantheline bromide, based on what I've read over the years. But even then there will probably be some hit and miss going on for severe HH sufferers. I'm just hoping that with the drug I can find some kind of regimen that it works well enough for me to take some control of the HH, possibly also in combination with ionto with glyco solution (either by crushing pills into tap water or ideally getting a solution prescribed, although the latter will be tough). There are some studies out there that claim quite good results with glyco + ionto, also suggesting that there might be some 'build up' in the treated areas, meaning the sweating subsides for a couple of days after a treatment in the treated areas (hands, feet), while the side effects de to systemic absorption subside after the first day. That is obvioulsy my main hope, because it could potentially mean you can limit the dosage you take orally for the rest of your body hh and improve the overall effectiveness.
But I won't know if all of this works for me as well until/if I actually get my hands on some of this medicine, obviously. I'm just hoping it will work as well as is being sad by some people who use it.
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Jezza
Well-known member
Pretty much yeah...
Both in this study Wiley InterScience :: Session Cookies that you may or not be able to access as well as on fora I've read quite often that people tried probanthine and robinul and found robinul to be more effective and easier to deal with in terms of side effects. There used to be a guy out here named Pinker who I know has experience with both (well, oral probanthine and a glyco solution, used with ionto at least, I'm not sure about oral glyco as well), but he decided to get off this forum from now. You can search experiences in the esfb board however, although some posts there seem to have been taken out for some reason.
Both in this study Wiley InterScience :: Session Cookies that you may or not be able to access as well as on fora I've read quite often that people tried probanthine and robinul and found robinul to be more effective and easier to deal with in terms of side effects. There used to be a guy out here named Pinker who I know has experience with both (well, oral probanthine and a glyco solution, used with ionto at least, I'm not sure about oral glyco as well), but he decided to get off this forum from now. You can search experiences in the esfb board however, although some posts there seem to have been taken out for some reason.