Getting Robinul in the Uk

[ukchick]

So we waited 2 hours to see the dermatologist ( also after a 6 month wait)...she was adamant that there is nothing else that can be done to help my daughters sweating...I asked her about Robinul...she told me that she has a patient on it and she will look into it and send me a prescription for some.

So hearbreaking to give my daughter no hope but because I did some homework on this HH I could suggest something.

Soooo annoying,dr's have no idea how this horrible thing effects lives in so many ways....

Hopefully this will help her finally even if it just reduces the sweating a tiny bit.

I would appreciate anyones experience with Robinul...thanks so much

 

[like a sir]

Hello there, how are you doing

May I ask where is the HH localized for your daughter? Yea I know what you mean, most dermatologist dont even bother with this condition as they know very little about it, what you have to do is try to find a specialist in HH so he/she can provide better treatment options for your daughters. But onto your question, good news, at pharmacy.ca - Canada's internet pharmacy you can buy glycopyrrolate (generic name of robinul) at very affordable price and offer worldwide delivery, I know this because I bought from them. Canadian law does not require prescription for robinul thats why they can sell it, they will do a online health check with you before letting you buy it, ofcourse if you manage to get a prescription for the doctor at UK that would be nice aswell, as you can just send a copy to them.

But prescription is not mandatory from my knownledge, if your daughters HH is palm/feet I would suggest antipersipirant such as odaban/drysol, or ionto machines, I think you recommended me one lol, im looking for one at a affordable price.

Robinul or Glycopyrrolate (generic name) are very effective for HH but they do have secondary effects such as dry mouth, eyes, diziness, etc. What you need to know is that is a give or take, it will reduce sweating dramatically but it will also make you feel somewhat uncomfortable because of the dry mouth and such. Also you have to take it everyday if you want it to be a consistent treatment.

I hope the info I posted helped a bit.

 

[ImNotMyIllness]

I remember during college I developed HH and would go through a couple pairs of socks a day. After I graduated, I discovered that Botox was an effective cure for 4-12 months. I went to a Dermatologist and it worked like a charm-But very painful!
........I believe now, they have the know how to remove your sweat glands using lasers (I think or by using "microwaves")..........I don't know too much about it but it's worth researching.

 

[ukchick]

Hello there, how are you doing

May I ask where is the HH localized for your daughter? Yea I know what you mean, most dermatologist dont even bother with this condition as they know very little about it, what you have to do is try to find a specialist in HH so he/she can provide better treatment options for your daughters. But onto youmr question, good news, at pharmacy.ca - Canada's internet pharmacy you can buy glycopyrrolate (generic name of robinul) at very affordable price and offer worldwide delivery, I know this because I bought from them. Canadian law does not require prescription for robinul thats why they can sell it, they will do a online health check with you before letting you buy it, ofcourse if you manage to get a prescription for the doctor at UK that would be nice aswell, as you can just send a copy to them.

But prescription is not mandatory from my knownledge, if your daughters HH is palm/feet I would suggest antipersipirant such as odaban/drysol, or ionto machines, I think you recommended me one lol, im looking for one at a affordable price.

Robinul or Glycopyrrolate (generic name) are very effective for HH but they do have secondary effects such as dry mouth, eyes, diziness, etc. What you need to know is that is a give or take, it will reduce sweating dramatically but it will also make you feel somewhat uncomfortable because of the dry mouth and such. Also you have to take it everyday if you want it to be a consistent treatment.

I hope the info I posted helped a bit.

Thank you for your advice..I'm hoping to keep on top of the side effects by encouraging my daughter to drink lots of water,use dry mouth products and start her off on a small dose.
She has tried ionto for a year and a half..altering time,frequency,levels,bicarb,glyco in the water..every angle pretty much.
She's tried: secure wipes,driclor,maxim,odaban,certain dri,anhydrol forte,Ditropan and Pranolol.
She suffers over most of her body but her hands are the most bothersome to her in so many ways. They do seem to be getting worse also.
Thanks again for your help,if I can get a prescription for the Robinul,hopefully,I can save money. I do agree though,that I probably would get to the point of purchasing some from Canada if I struggle to get it here in the UK.
Just a bit concerned that she has a mild disability that does already make her tired,dizzy and unsteady most days...she'll have to stop the medicine if she feels a great deal worse...

 

[margiehope]

Just to say that the glyco obtained through pharmacy.ca is called "Avert". Robinul is another brand name but still glyco.

I'm lucky to live in Toronto, where they have a standing pharmacy. (Just picked some Avert up the other day. It's turning colder here, but so many of the buildings are overheated that I still take some of the med if need be.)

I've been on Avert for several years--sometimes get dry mouth but no other serious side effects.

Oh--there are various products at my drugstores, and I'm sure at yours, that help with dry mouth--toothpaste, mouth wash, a gel I sometimes carry with me.

I didn't develop HH until I was well along in life. It must be very hard for a young person.

Good luck!

 

[ukchick]

My daughter has now been on Robinul for 3 days.

She has noticed a slight reduction in her sweating and only a mild dry mouth.

Just wondering if anyone knows whether the side effects will build up to being worse if she continues to take them on a daily basis or should we expect them to stay pretty much the same.

I would appreciate any advice.

 

[margiehope]

My daughter has now been on Robinul for 3 days.

She has noticed a slight reduction in her sweating and only a mild dry mouth.

Just wondering if anyone knows whether the side effects will build up to being worse if she continues to take them on a daily basis or should we expect them to stay pretty much the same.

I would appreciate any advice.

The thing is, no one else can say for sure how your daughter will react.
Not only is it different for every person, but it can be different for the SAME person at different times.

I've been on glyco for some years, but I don't think my limited side effects
escalated. Even now, I sometimes have a very dry mouth and can find it hard to swallow. Not that often though.

I'll be wishing you both the best.

 

[ukchick]

Thanks for your info.. It sounds similar to ionto- different for different people.
We will keep going and hope the Robinul helps her. X

 

[Sprawling]

I hope the Robinul helps her. She seems highly resistant to most treatments. Is she still doing the ionto as well as taking the pills? Poor child. Wish she didn't have to suffer.

 

[ukchick]

No,after a year and a half we decided to stop the ionto.
She has seen some improvement with the Robinul....just hoping and praying she's finally found something that works for her xx

 

[ukchick]

If you're in the UK you may be able to receive glycopyrrolate solution on prescription, it would be a lot more effective than dissolving robinul tablets if that's what you're doing.

Out of curiosity, what machine and what current do you use?

If your daughter is in her teens it may be that she is going through the worst of it and ionto could become more effective later on. I remember having to lean on tissues when I was doing my GCSE exams so I didn't soak through the paper.

No,she is taking the Robinul orally. We did use a liquid glyco solutionin the ionto trays for at least 3 months. We were using the Idrostar after trying The Hidrex machine....we tried every possible way using the ionto...increase voltage,longer time,less time,every day,every other day,every 3 days,giving it a break,using bicarb in water etc etc we tried every way. It works perfectly for my sweaty feet but nothing for her.
We are in the UK.x