Pulse radio frequency sympathectomy instead of ETS

hello all, im new to this forum but have had hyperhydrosis for a very long time since i was 13 now im 28 and had finally had enough and decided to go for an operation.
at the consultation I got offered 2 types of surgery one was ETS but another was Pulse radio frequency sympathectomy, so i decided to try that because it is not as painful or inrusive as ETC, and you and you are in and home in 3 hours plus the sedation is brilliant

They just zap you T2 t3 t4 nerves with radio frequencies in attempt to damage them by inserting a needle in 3 places in your spine. it is dangerous as it is close to the lung and they don't deflate it but it isn't as bad as ETS.
the ganglia's can grow back but slightly different, so it isn't really damaging your body and so far it seems to ahve worked.
I would recomend it to someone who isnt sure about ETS ask about what i had next time you visit you doctor.
there are some side affects to ETS and PRFS as in sweat else where but so far so good.
See pics of my xray
http://i31.tinypic.com/242ybeo.jpg

sounds like they are finally figuring out ways to revise and make ETS better. Maybe one day it will be safe and effective enough (with no side effects) to be a viable option for most HH sufferers. I sure do hope so

yeah that is ture, i can see why. i was told about ETS, but the consultant did a quick google check (thanks google) and came up with this idea instead. so i thought why not i'll try anything.
Plus it was easier to do and simplier, my back is still sore in a few places he might of hit something else and made it sore but tis worth it but i'm going the gym and get back into being fit again. if anyone wants to know more please get in touch

wow 0_0

so much info..could i talk u into posting this over at

http://etsandreversals.yuku.com/
?

God bless u for your strength, the more we know the better

just to let you know ive joined that group forum and posted the same thing over there as well.

anybody else know much about PRFS?

this web site explains the basics of t ganglions
http://my.execpc.com/~crawf/ideas.htm
yes it was done on the nhs I was referd by my doc to my local hospitall and the surgery was performed via the pain clinic
had hydrosis of axillary and some on the hands but i wasnt too worrid about palmar just axillary

Hi scruffpot !

So how did you ask your doctor , because everytime I talk to him he seem to ignore me.
Can I just ask did you have palmer HH as well or was it just the underarm , and how is the result after the operation

ok, right now did i ask the doc? I just went there and told them. im not embarrassed easily so i thought to myself, well docs have a lot of people to deal with and with worse things so I just went ahead and had a word.
there are a few docs who couldn't actually care so if one doesn't take it seriously then find a another who does. and so on till you get an awnser, but don't just get one awnser get different opinions.
where are you, city country wise?
yeah things have improved i think, haven't had much CS, only on back of legs but i wear shorts all the time.
plamar and axillary - axillary was the worst.

Cheers Scruffpot,

When I discovered that I had this conditon, I felt so lonely and thought that I must be one in a million to have it, but it turned out more common than I thought.

I am in Manchester mate , I dont have underarm sweating but my hands and feet are really off putting.How long did you have to wait for the operation ? Heard that CS is a serious problem but i wouldnt mind it if it is on my back and the back of the legs.

Cheers Scruffpot,

When I discovered that I had this conditon, I felt so lonely and thought that I must be one in a million to have it, but it turned out more common than I thought.

I am in Manchester mate , I dont have underarm sweating but my hands and feet are really off putting.How long did you have to wait for the operation ? Heard that CS is a serious problem but i wouldnt mind it if it is on my back and the back of the legs.

hi, hows you? sos to hear you have a problem with HH, its pants when you realise that you have a HH problem, but you do everything to fit in as normal, but there are loads of us out here, generally hiding away but we are all here

I waited about a month to get my op I had it done on the NHS. But i went through consultants, doctors nurses and other peeps to help me decide what was the best option to go with.

With CS it is not garunteed that it will be there or where it will appear, be it on back legs, underarms, feet etc. That is a gamble if you decide to have any op, thats what the docs are there for to talk to you about it.
My op wasn't ETS it still was a sypathetic block but less obrusive and as painful.

A lot of people will say dont go for any ets or otherwise surgery as there are complications e.g see http://etsandreversals.yuku.com
for example, but some people will do, there isnt much research regarding why we all sweat as much as we do, and what we do to conrol it. I know I had a different surgery which has seemed to have improved my life, but it may do for you it may not. what i had was Pulse Radio Frequency sympatectomy. talk to your docs about it and see if you can get reffered to a pain clinic in a hospital (thats what I had mine done through).
However don't rush into anything, never mind how bad a sympton is, as i said it could work it might not.


scruffpot

Hey scruffpot, wow! this sounds interesting, I have HH bad in the hands and feet, im cautious about having ETS because it is so invasive and having heard some horror storys about the CS being worse than the origional problem, but this sounds alot more delicate and ill most certainly be mentioning it to the nurse at my next iontophoresis session (ive just started this treatment and im on the 5th session-no improvement as yet...) thanks for posting this, at least it is another option to think about! :lol:

have a chat with the nurses docs and the consultants about PRFS, so far it seems to be ok dtill for me. i ahve no idea what it would be like for you. problem is if you do go for the op and it works Brilliant, if it doesn't well unfort there isn't much you can do. But it is just an idea and defiantly worth chatting to the nurse about. if they need to know anymore get them to ahve a look at my xrays online or email me through this site

scruffpot

oooh thanks for the heads up on that article very interesting indeed. It is that proceedure or somthing similar I had done.
But so far it has stopped a lot of sweating I think i have improved about 70%
I can sit around in a tshirt and just keep dry
I ahve to get a follow up consultation booked in a few weeks.

scruffpot said:

hello all, im new to this forum but have had hyperhydrosis for a very long time since i was 13 now im 28 and had finally had enough and decided to go for an operation.
at the consultation I got offered 2 types of surgery one was ETS but another was Pulse radio frequency sympathectomy, so i decided to try that because it is not as painful or inrusive as ETC, and you and you are in and home in 3 hours plus the sedation is brilliant

They just zap you T2 t3 t4 nerves with radio frequencies in attempt to damage them by inserting a needle in 3 places in your spine. it is dangerous as it is close to the lung and they don't deflate it but it isn't as bad as ETS.
the ganglia's can grow back but slightly different, so it isn't really damaging your body and so far it seems to ahve worked.
I would recomend it to someone who isnt sure about ETS ask about what i had next time you visit you doctor.
there are some side affects to ETS and PRFS as in sweat else where but so far so good.
See pics of my xray
http://i31.tinypic.com/242ybeo.jpg

Click to expand...

hiya im becky i wanted to know abit more about this procedure and if you would recommend it to other sufferers like me i did go in for ets last october but things didnt go to plan i had problems when they collapsed my lung so the operation couldnt be done so i am trying to see if there is anything else that might help me is the procedure availible in england could you email me back thanks.

howdy bex sure I'll try and sort out some info for you f I can find some , my email is [email protected] i should be online most of the time lately, as Ive trapped nerves in my spine (that will teach me to go to the gym )and off work for a bit so if you have msn add me


scruffpot

new procedure

hi thanks for that i will add you to my msn so next time your online we can chat if you like any advice would be alot of help talk soon.

hi scruffpot, could you tell a bit more about your sweating before and now? i read that you said it has improved by 70%, but does that mean that you arent bothered by it anymore, or could it have been better etc? also do you know anything about any other cases, that maybe you have a high improvement percentage in comparison or maybe you have lower?

thanks for sharing this by the way! :wink:

rambo87 said:

hi scruffpot, could you tell a bit more about your sweating before and now? i read that you said it has improved by 70%, but does that mean that you arent bothered by it anymore, or could it have been better etc? also do you know anything about any other cases, that maybe you have a high improvement percentage in comparison or maybe you have lower?

thanks for sharing this by the way! :wink:

Click to expand...

Hi, rambo, yes it has improved as i used to sweat underarms really bad and now hardly any, and im not bothered by it compared to how i used to be.
i onyl know about a fwe cases the consultant told me he had performed and there was a high rate of success, but that always depends on the person . but Im going to see him in the beginning of sept so i'll find out details.

what do you feel about palpitations, blushing etc?

any long term side effects? how's working out going, is heart rate the same max/min?

thanks