RGirl82
New member
Hi, I wanted to share a little about my HH issues and what I've found to be somewhat helpful. I've suffered from severe HH as long as I can remember, all over my body - hands, feet, face, everywhere!
I've never tried an iontophoresis machine (sp?) - (too expensive) and I've vowed to never have the surgery since there are so many awful horror stories out there. I finally tried oxybutynin pills (generic Robinol I think?) and THEY WORK! Definitely not perfect, but it's helped me so much. I ordered from an online UK-based pharmacy so I didn't need a prescription ($50 for 500 pills - great deal), but once I'm out I'm going to see if I can get an Rx from my doc. They take a few days before they really start working, but I've noticed such a difference! I take one when I first wake up, then one in the afternoon and one in the evening. The key is to take one when you first wake up or right when you get out of the shower (before you're even sweating). The side effects are not pleasant but I think sweating all the time is much worse! The worst side effects I've noticed are dry mouth, dry eyes and headache. I was actually able to get a manicure for the first time in my life without worrying about sweaty hands! It was a great feeling. Also, I'm amazed because where I live it hardly ever gets below 90 degrees during the day! If anyone also has tried oxybutynin or has any advice, please share!
I've never tried an iontophoresis machine (sp?) - (too expensive) and I've vowed to never have the surgery since there are so many awful horror stories out there. I finally tried oxybutynin pills (generic Robinol I think?) and THEY WORK! Definitely not perfect, but it's helped me so much. I ordered from an online UK-based pharmacy so I didn't need a prescription ($50 for 500 pills - great deal), but once I'm out I'm going to see if I can get an Rx from my doc. They take a few days before they really start working, but I've noticed such a difference! I take one when I first wake up, then one in the afternoon and one in the evening. The key is to take one when you first wake up or right when you get out of the shower (before you're even sweating). The side effects are not pleasant but I think sweating all the time is much worse! The worst side effects I've noticed are dry mouth, dry eyes and headache. I was actually able to get a manicure for the first time in my life without worrying about sweaty hands! It was a great feeling. Also, I'm amazed because where I live it hardly ever gets below 90 degrees during the day! If anyone also has tried oxybutynin or has any advice, please share!